• Presented at International Society for Pharmacoeconomics and Outcomes Research (ISPOR) 2017

  • Collaborator: Hospinnomics (Paris School of Economics and Assistance Publique – Hôpitaux de Paris)

  • Authors: Raïs S, Radoszycki L, Dourgnon P, Rochaix L, Chekroun M

The development of online patient communities worldwide has prompted questions about their ability to collect reliable information for a deeper understanding of patients’ health experiences and unmet needs. The goal of this research is to analyse the key socio-economic characteristics of patient communities’ users, examine their correspondence with national patients’ demographics and provide guidance on whether or not weighting schemes should be considered for patients’ communities’ samples of users. Health communities provide a new service for a swift collection and analysis of patient-reported outcomes in a real-world setting.